Reason for this Site:
What is CBGD? Cortical Basal Ganglionic Degeneration is a little known neurodegenerative disease in the Parkinson’s family which my father was diagnosed with in 2001 by the Mayo Clinic . His family doctor had thrown up his hands and sent him there since he was unable to determine a prognosis for his symptoms. Our search for answers and a possible cure yielded very little information and over the years we watched as the disease took a toll on my father’s body. Ultimately, he passed away in 2007 from complications of the disease.
My goal is for others to use this site as a resource to help those affected by diseases like CBGD, or PSP, and Parkinson’s. I chose to do a site to gather comprehensive information on CBGD because it was hard for us to find any information about the disease. Through several different resources we found treatments and therapies to make my father as comfortable as possible since there is no cure. In the meantime, science continues to do research to find an effective treatment and cure of CBGD. There are many questions that remain unanswered but I hope that together we will find them soon.